Posts Tagged ‘stiffness’

Letter to Normals (Part 4)

“Fibromyalgics have a different kind of pain that is hard to treat. It is not caused by inflammation like injury. It is not a constant ache in one place like a broken bone. It moves around my body daily and hourly and changes in severity and type.” The commercial you may have seen on television says it is a dull, aching pain. I’m here to tell you it is far from just that. There may be times when it is dull, stabbing, cramping, throbbing, burning, jabbing, or excruciating , or some other adjective that I can’t think of right now. Sometimes it feels like it hurts deep in my bone. There are also times when it feels like m whole body is tying up in knots and there is nothing I can do about it. There are 18 tender points used to diagnose fibromyalgia. You need 11 in order to get diagnosed, and I have all 18. If you press on one and hurt me I will not be mad at you. I know it is not your fault. “If Eskimos have a hundred words for snow, fibromyalgics should have them for pain. Sometimes I hurt all over.” Sometimes I can’t pin point where exactly the pain is I just know that everything hurts.

“Besides pain we have muscle stiffness which is worse in the morning.” This is not one of my biggest symptoms. However, I do experience it at times in my shoulders, knees, hips, elbows, wrists, but the worst is my fingers. This is not very frequent, but I have experienced this symptom. “I’m creaky and I’m klutzy.” I’m creaky because I am hypermobile in some joints and I have joints that I need to pop often. However, I personally find back and neck cracking really icky so if you must do it please warn me to cover my eyes and ears. Thank you. J Sometimes, “I trip over things no one can see, and I bump into people I’m walking with [or walls because] my coordination is off.  I just don’t seem to connect the way I should.” There are times when I must walk very slowly up or down stairs because I am too stiff or in too much discomfort to walk them normally.