Posts Tagged ‘sleep disturbances’

Letter to Normals (Part 6)

“I mentioned my sensitivities earlier and I need to talk about them again.”  Most people with this condition have strong sensitivities to smell and sound, but I do not have much of a problem with these. Sound only affects me if I’m already having a ‘bad day’ or ‘flare.’ I also have a problem with heat and cold.” The cold is one of my main triggers and even air conditioning or being outside a short time can leave me feeling absolutely horrible. The heat, even for a short time, can leave me feeling similar to having sun poisoning, but without the actual sun burn. “It sounds like I’m never happy but that isn’t it. These things make me physically ill. [It stresses] me out [because it makes] my pain worse and I get exhausted.” Remember that sometimes when I feel this way I may be very quiet but “there’s nothing you can do to make me feel better, so it’s just better to let me be.”

“I have problems sleeping. Sometimes I get really restless and wake up and can’t get back to sleep.” Other times, I sleep for very long periods of time. I may even sleep for a very long time and still feel exhausted when I wake up. This occurs because my brain waves are affecting my sleep patterns. I know that may sound confusing. “There are times when tossing and turning and getting up and down to go to the bathroom” several times can be really disruptive.

Even in my sleep…

I am exhausted right now.

Last night I kept waking up due to pain in my hip. I do not know how people can say it is fake when it actually wakes me up in my sleep. There is absolutely no way that I, or anyone else, could make that up. When I do not wake up, I have had people tell me that I groan in my sleep like I’m in pain. I do talk (and laugh) in my sleep and people have several funny stories about the different things I say in my sleep. Sometimes they hear me say things like “Ouch”, “I’m hurting”, or “This really hurts.” When I hear about it, I think it is funny and it makes me laugh.

Then, the humidity was pretty high today and I’ve been in pain all day. I have tried taking Aleve and it barely even takes the edge off. I am going back to the rheumatologist in about two weeks and hopefully he will give me something stronger.

What do you take for pain? Leave a comment and let me know.