Posts Tagged ‘rheumatologist’

Rheumy Visit

I will post the continuation(s) of my Letter to Normals tomorrow again.

Yesterday, I went to see the rheumatologist. I am one of the lucky people to have a great doctor who can treat fibro. Sometimes I doubt that he truly believes my condition is real and valid, but he is very nice.

I received a new prescription medicine for pain which I am hoping will work much better than Aleve. Since there are things that could go wrong when starting any new medication, I am waiting until Saturday to start my pills. I do not want to risk having side effects when I am in the house all by myself.

Luckily, the rheumy says that it does not seem like there is any other disease process going on but he asked for some blood work just to make sure. The results will be available later this week and I will be sure to let you all know.

Lyme Disease and Fibro..hype or reality??

For those of you who are active on forums and reading blogs on fibromyalgia, you have surely seen at least one post or comment with someone saying that fibromyalgia does not exist and it is actually lyme disease.

Is this true?
Well, I surely do not know.

I was tested for lyme, like nearly everyone else with fibromyalgia in order to rule it out. Needless to say, the test came back negative. I told the rheumatologist and other doctors that I had never had a tick. Ever. There was no way it could be lyme.

Then, today out of the blue I remembered. I was in 6th grade and sitting in the back of the classroom. I ran my fingers through my hair and I felt something. What was it? I tried to run my fingers through it thinking maybe someone threw a piece of paper at me or maybe it was just a leaf. I couldn’t get it out. I tried again and again pulling harder every time. Eventually, I got it out, it WAS a tick. I got scared and tried to throw it on the ground trying not to call attention to myself amidst my panic.

Did all of the legs come out?
I don’t know.
Did I end up getting a bulls-eye rash?
I don’t know.
Could I have lyme disease?
I don’t know.

However, here is what I believe to be true:

  1. Fibromyalgia is a real condition and so is lyme disease
  2. There are people with both lyme disease and fibromyalgia but there are also people with only one.
  3. Fibromyalgia is NOT always lyme disease no matter how inaccurate people claim the tests are for lyme disease.

Do I think, honestly, that I have lyme disease?
Absolutely not.
There are certain symptoms that go along with fibromyalgia, such as the tender points (or trigger points, depending on what you call them), that are not the same as lyme disease. Even though apparently there is new criteria (…sounds like I’m studying for an exam) for diagnosing fibro that does not include the trigger point test according to a fibromyalgia magazine from last year. I do not quite understand why they have taken this out, but perhaps that is a topic for another blog post. Anyway, there are certain symptoms in both conditions that do not overlap so they must be separate, no?

I would love to hear what you think.
Why not leave a comment and share??

People STILL think fibromyalgia is fake!

It is not a shock to hear that there are still people who think fibromyalgia is fake. It is one of the most common complaints of people with this illness.  Despite the studies that have been done, it is still difficult for some people with fibromyalgia to even get a diagnosis. The studies have demonstrated the differences in the brain of people with fibromyalgia. It is so discouraging to hear people say that if you just don’t think about the pain, then it won’t be there because it is all in your head. I worried for a long time that if I told anyone that I had fibromyalgia they would immediately dismiss it because of rumors they may have heard in the past.

There was a time that I felt all alone with fibromyalgia. My family had made negative comments regarding fibromyalgia and I was not sure if they were joking or not. It was so upsetting to hear things and doubt whether my own family even believed me that there was something wrong with me and beyond my control. As a result, I did not see the rheumatologist for over a year and I managed my pain in silence and self-treatment. Eventually, they realized that I was still hurting and hurt by the comments that had been made in the past. Since then, my family has all been very supportive. At times, I still feel like I am alone in my battle with fibromyalgia but I know that I will have support when/if I need/want it.

I feel like the people in my life who do not think it is fake, do not fully understand it. Sometimes I wonder what people think about me having fibromyalgia. What do they think it is? Do they think it is going to kill me? What do they think I go through? I have been very open, but many people do not like to ask questions. I feel constantly misunderstood by several people in my life. I just hope that one day if my friends have questions, they will ask me. Some of them still do not even know.

I truly hope that all of you with fibromyalgia have supportive family and friends in your life so that you never have to feel alone with fibromyalgia.

I am sure that everyone with fibromyalgia has had some experience(s) with people thinking fibromyalgia is fake. Share your story by leaving a comment.