Posts Tagged ‘chronic illness’

Letter to Normals (Part 9 – Finally Finished!!)

The last symptoms I will mention are neuropathy and parasthesia. I have neuropathy and/or parathesia at times in my arms, fingers, legs, and toes. Sometimes m fingers or toes feel very numb or hut a lot. Sometimes my feet and arms will tingle or feel like pins and needles. Other times it may feel like I’m getting electric shocks in my arms or legs. They may even feel like they’re burning. Just because it doesn’t feel like it‘s burning if you touch it does not mean that I am not experiencing the burning on my skin. I can promise I will not lie about what I am experiencing and if I say it burns then it really does burn. Sometimes I may lose some sensation in my hands. Everything I touch feels like I’m not really touching it. If you can imaging feeling something through a piece of plastic wrapped around your finger that is what it kind of feel like, not like a glove but like a relatively thick plastic. I may also have very sensitive skin. When this is happening you may slightly touch me and I will make some sort of squeal or yelp. I know that you didn’t intend to hurt me and it’s not your fault. Even a slight breeze or getting dressed can hurt when I am experiencing this so don’t feel bad.

I have other symptoms that I don’t prefer to talk about. “Some of these symptoms are embarrassing and hard to talk about it but I promise to try” if it’s really important to you. If you look it up, and see something really ‘different,’ I’d really appreciate it if you asked because everyone with fibro has some variety within their symptoms. “I hope that you will have patience with me through these things.” I try really hard not to constantly mention my illness and dwell on it. I don’t want it to come between me and you even though I know it can put a lot of excess stress on a relationship or friendship or (fill in our status here). I’m sorry for any inconvenience I cause and any times I have to bail. I promise it’s not intentional. Thank you so much for reading this super long letter. I really appreciate you trying to understand. Never forget that you mean a lot to me and I really appreciate you in my life.

Now you know a little more and if you have ANY questions, ASK!!

November 17, 2009


Life is Beautiful Challenge

I challenge you to make a change.

Depression is so common with fibromyalgia because of the differences in chemicals in the brain. It does NOT have to be this way. When people are in a state of clinical depression or depression of any kind, they are blind to the beauty in their life and the world surrounding them. This beauty is surrounding each and every one of us.

This was a technique I learned in an acting class and I am going to share it with you today:

When people fall in love, it is a natural high. Every thing in the world seems wonderful and happy. It is like nothing can bring them down. You don’t have to have a significant other to fall in love with every day. There are things all around you that you can fall in love with. Here is how it works:

  • Start with one thing in your day that inspires you. It can be a loved one, a pet, a flower, a sunset, or anything else that lets you feel good. Fall in love with it. It sounds silly, but you can do it.
  • Then, try to do this 5 times a day. Find the beauty in the world around you. Fall in love with all of the wonderful things surrounding you.
  • Turn the love on yourself. Find the traits and characteristics about yourself that are beautiful and wonderful. Love them. The things that you do not like, embrace them! They are the things that make you unique and beautiful. As with almost all insecurities, there are people in the world who would love to have the things that you dislike about yourself. Do not waste time being negative. Try to love everything about yourself. Accept and embrace the things you do not like about yourself. Learn to love them.
  • The ultimate goal is to fall in love with life. No one is ever going to live the same life you life or have the same experiences as you so make the most of your life. Every moment will only come once and you can never get it back. Embrace yourself. Embrace the moment. Embrace you life…it is beautiful.

This is possible even with a chronic illness.

Give it a try.

Love your life.
Embrace yourself.
Life is beautiful.

Daily Life…

I have had fibromyalgia “officially” for 2 years now. However, it seems that too often I find myself surprised by some of my limitations and I am caught off guard.

Overall, my day was good and I was not in too much pain. This is surprising considering that I woke up several times throughout the night due to pain in my hip, which led to difficulty waking up on time and losing out on a pretty good portion of my day.

Then, I went grocery shopping with my mom. We save produce and the frozen section for last. As with many people with fibromyalgia, the cold and I do not mix very well. We couldn’t have been in that section for more than 20 minutes at the most, but ever since then I have been in quite a bit of pain. I took Aleve but it barely ever relieves even 30% of my pain. Needless to say, I am writing this in pain. Lucky me.

Then, my friend texted me to go for a walk. I do not see him very often so I thought that a walk might actually be good for me. The temperature had dropped so my plan to get some heat didn’t exactly work out as planned. Luckily, he is, and always has been, very considerate of my condition and patient with me. We stopped a few times so I could sit down and rest because it was harder for me to walk. He has been friends with me long enough to know when I am walking funny and that usually is a clue to him that I need a break. Despite the pain, I still had a good time. Hopefully, I will feel better tomorrow.